Royal Children’s Hospital: The Largest Hearing Databank in the World Goes Global

Aug 31, 2019 | Australia, Hearing Loss, Hearing Registry

Hearing exam result - audiogram and hearing aids on the table

The Victorian Childhood Impairment Longitudinal Databank (VicCHILD) is a population-based longitudinal databank open to every child with permanent hearing loss in Victoria. VicCHILD started in 2012 and stems from 25 years of work by the Royal Children’s Hospital and MCRI. By the end of 2018, 807 children were enrolled and provided baseline data. By 2020 more than 1000 children will be taking part, making it the largest hearing data bank in the world as reported in EurekAlert! 

TrialSite News offers a brief summary in question and answer format.

What is the Victorian Childhood Impairment Longitudinal Databank (VicCHILD)?

It is a unique databank that is a population-based longitudinal databank open to every child with permanent hearing loss in Victoria, Australia. By 2020 it is anticipated that more than 1000 children will be participating in the registry study.

VicCHILD collects data at enrollment, two years of age, school entry, and late primary/early high school. It involves parent questionnaires, child assessments and taking saliva samples.

Who are VicHILD’S Sponsors?

Royal Children’s Hospital and Murdoch Children’s Research Institute (MCRI)

What can the VicCHILD Registry be used for?

Researchers, such as Dr. Valerie Sung of MCRI believes the databank can answer questions about hearing loss. She notes that the databank will help investigators probe into why some children with hearing losses fare better than others. Why do some children adapt and thrive while others struggle?

Some Findings to Date

The data reveal that language development and speech, for example, in hearing-impaired children lag behind other children regardless of advancements in earlier detection and intervention over the past decade.

Who are the Study’s Lead Researchers

Dr. Valerie Sung, MCRI, Lead Author 

Infant Hearing Loss in Australia

About 600 Australian infants each year are diagnosed with congenital hearing loss within weeks of birth

Funding

  • Royal Children’s Hospital Foundation
  • The Murdoch Children’s Research Institute

Several other organizations contributed support.

Call to Action: Interested in this hearing databank? We include a link to their website at the source. TrialSite News Matching services can also be used at no cost.

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