Lupus Foundation of America: Project IMPACT for Increasing Minority Participation in Lupus Clinical Trials

Nov 6, 2019 | Faith-Based, Lupus, Minority Participation in Clinical Trials, Patient Recruitment

Lupus Foundation of America Project IMPACT for Increasing Minority Participation in Lupus Clinical Trials

The IMPACT project is a faith-based approach to increasing awareness and participation in lupus clinical trials. The project has a Community Advisor Board that has developed training materials on participation in lupus clinical trials. 

Project IMPACT
Increasing Minority Participation and Awareness in Clinical Trials (IMPACT) for Lupus is a one-year grant to the Lupus Foundation of America by the Office of Minority Health as part of a larger federal initiative, the National Health Education Lupus Program. A primary goal of IMPACT for Lupus is to work hand-in-hand with national and community partners (called the IMPACT for Lupus Action Partnership) to develop and test a new education model aimed at raising awareness of lupus clinical trials among minority populations affected by lupus. Back in 2016 and 2017 when it was launched IMPACT for Lupus developed a faith-based education model and materials for African Americans with lupus.

Education Model Initially Implemented at 3 Sites

The three sites included Atlanta, GA in collaboration with the Georgia Chapter of the Lupus Foundation of America; Charleston, South Carolina in collaboration with Medical University of South Carolina and Fort Washington, Maryland in collaboration with Carlden Publishing

Call to Action: Follow the link for video as well.