In the pursuit of patient and physician digital engagement, Rafael Pharmaceuticals Inc., which focuses on the growing field of cancer metabolism-based therapeutics, introduced a new web portal offering information about clinical trials and related information. Standalone portals aren’t that helpful to facilitate digital engagement.
With the goal of engaging patients and their physicians, the company launched a portal listing all clinical trials and associated cancer resources in what they hope to be an engaging, user-friendly experience. Called Rafael Trial Connect, the CEO touted “We believe this portal will enable cancer patients to make the most of informed decisions regarding their care. We know that a cancer diagnosis can be heartbreaking and confusing, and we want to do what we can to ease the burden for patients, their families and physicians by providing access to all of our resources and information in one place.”
Rafael Trial Connect is an initial step in the company’s goal of revamping its digital presence to differentiate itself in what is a crowded oncology company market. Rafael Pharmaceuticals was founded in the year 2000. Their portal offers direct links to ongoing clinical trials in the following categories including acute myeloid leukemia (AML), Burkitt’s lymphoma and metastatic pancreatic cancer.
Digital Engagement for Drug Sponsors Not Straightforward
Many patients are hesitant to visit biopharmaceutical company websites. There could be a natural hesitation as, right or wrong, there is a perception out there that drug companies may have a certain bias. Drug companies are almost better off if they integrate with health networks (patient-based, physician, provider and other types of organizations seeking to share information and empower patients and providers).
Patients are People & as Such Desire Real Meaningful Engagement
Moreover, we at TrialSite News believe the concept of a portal is fairly static and antiquated—perhaps ready to be called out for what they are—washed up tools from a different, earlier digital era.
Long ago it has been evidenced that patient and medical portals are not used anywhere near what they could be—they didn’t live up to their promise.
Patient’s don’t have that much interest in just perusing portals for information. Hence most health systems and providers report that their patient portals (in the provider world) are under-utilized. Patients are not that interested.
Portals don’t incentivize patients from a financial, intellectual or even self-preservation perspective. They are busy—with work, family, friends and daily life. In fact, life is too busy for portals to work today. Evidencing this was a report that Mayo Clinic patients utilized their portal only 5% of the time.
When individuals are facing a healthcare issue (or one of their family members or loved ones are) they seek to authentically connect with others—whether in real time and in person, via telephone or digital channels, social networks or even smartphone apps.
They seek to speak with real, qualified people about health information, options and risks. They desire relevant, purpose-driven engagement either directly in person, on the phone or digitally in social networks, for example, when it meets their needs. They seek others interested in the same health topic and millions have flocked to social networks, such as Facebook where people can learn and share from each other. Patients are people and people desire meaningful connection. Traditional portals, especially when designed as a standalone, is all but a waste of time, effort, and money.Source: GlobeNewswire